The good, the bad and the ugly

The good- George was able to skip his blood transfusion today because his numbers only dropped slightly. Not enough to require intervention.
The bad- George will need to stay on high dose steroids for another few months to make sure his antibodies stay suppressed.
The ugly- George will need to stay on high dose steroids for another few months to make sure his antibodies stay suppressed.

All I have to say is poor buddy. His moods are up and down (mostly down) and he is overwhelmed by anger and frustration. I just have to keep reminding myself that it isn’t his fault and have compassion for him for what he must be feeling like inside to be acting this way outside. On a positive note, he has gained 3 lbs since Friday and doesn’t seem to be slowing up. His food of choice is chick fil a nuggets and Life cereal. Part of being in a transplant you have to be on a “transplant diet” which means no outside food or food from restaurants since there is no way to control the elements at which the food was kept or the safety of with  germs and contamination. I have caved in and just had to trust that God is protecting him from any food born illness at this point because he simply will not take no for an answer when he requests this. So we are in the drive thru at an average of twice a day and George is gaining weight accordingly. The Mitchell house will be in need of a very serious detox after George completes his transplant. I see some healthy New Years resolutions in our near future.
We will rest tomorrow and then back at it again at Nemours in Friday. The drs seem to think they have his anemia under control though which is a huge praise. So as awful as the steroids are, they seem to be doing one thing right and we will take that any day. Prayers for patients, sleep, calmness and continued healing. Oh yeah and pray for George too 😂.


Comments

  1. Stay strong, you are in our prayers.

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  2. Oh my goodness. Sweet George. So sorry he is having a rough patch. That stinks about steroids for so long. Glad they seem to be helping.

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  3. We love you George and are lifting you to your Creator who loves you most...rejoicing w you when you rejoice and mourning w you in the mourning...you are such a fighter! Just like your parents! Much love, the Sheas

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  4. Oh buddy, a little chick fil a is good for the soul. The steroids are rough. I will pray.

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