Medical mytery

When we came back up to Nemours yesterday George’s labs came back and shocked everyone. All of his levels had bottomed out. His ANC was 200. His hemoglobin was 8. His platelets were not even registering. He was immediately administered IV fluids and had lots more tests run. The drs were scratching their heads at why this was happening. None of it made sense. One thing was sure. He needed a platelet transfusion, a blood transfusion and Neupegen to try and get his counts back up to a safe place. We got the platelets and the Neupegen last night but his blood has to be special ordered so it wasn’t ready. We were home just in time to see the girls walk in from trick or treating. They had a great night even though we weren’t able to be with them for the fun. Fortunately we attended several Halloween events leading up to the actual big day so everyone including George got in on the fun. We are back at nemours this morning. We were told he has C-diff which is a bacterial infection in his intestines. This is common with transplant kids. Since they are on long term antibiotics the good bacteria in the intestines that fights this off is killed and so the bad bacteria takes over. He will start a new medicine to help get this taken care of. This does not however explain why all of his counts dropped. He is getting more platelets right now because the ones given to him last night still didn’t help the situation and the were still only at 4 this morning. His specialty blood is coming from Gainesville so it will not be here until 4:30 this afternoon. He will have to go check into Wolfson to receive this since it is a 4 hour transfusion. I haven’t heard back yet on whether or not we will be staying for good. They ran a bunch more tests and we will have to wait until this afternoon to determine the best plan. What they have determined is that he will not be continuing on with the IV medicine that he started on Wednesday that was going to kill his immune system. They can’t say for certain whether this had anything to do with his counts being knocked out but they also don’t want to take any chances. He will now be on another medicine that will do basically the same thing as that other one did but in an oral form and not through an IV. So a lot is going on with George right now. The drs really have no idea why either. They just have to keep testing him and keep a vigilant watch over him to make sure That this doesn’t get anymore out of control. As of right now it is a mystery. Praying for answers soon. Standing strong and not letting this new turn of events shake me. God is before us and we will just keep on trusting Him. We wait patiently and with our heads bowed and knees bent as we cry out to God to heal George. I wait for the LORD, my soul does wait, And in His word do I hope. Psalm 130:5