Welcome to seclusion

These past few weeks of seclusion and isolation really isn’t that strange to us. We are use to it, for the most part, because of George’s transplant rules. When you throw my husband working from home and the girls both out of school however it becomes a whole new ballgame. Good thing we all play well together because wow are we in close quarters. 24/7. The online homeschool programs have helped break up the monotony of trying to come up with activities. The closets are all cleaned out and the toys have been organized and are being shown new appreciation. The elastic in our pants is being put to the test. The tv is the all time hero of the century. Our prayers are heightened as well as our appreciation for people who have no choice but to be thrown into the war zone of CoViD 19. Just as we were starting to enjoy a little relaxation of being in seclusion from his transplant we are forced to tighten up the walls around us and protect our family and our boy. Going to Nemours today once again shook me up when I saw the severity of the situation. On one hand it is nice to be the only ones there because you are not scared of contracting the virus but on the other hand it is a realization that this virus is crazy contagious and deadly. It makes the little bubble of your own house, as crazy as it it right now, feel really good. George is on 2 immune suppressing drugs daily to help him with the anemia. His dr does not like this because of the Coronavirus. He has to stay on them but since his counts today came back pretty good as far as his hemoglobin, he is taking the steroid dose down to a half ML twice a day and will continue weaning him of this all together over the next few weeks. The other drug will be determined next week as far as continued use. It’s tricky and is a fine line of health for George. You want him taking these drugs to help him to continue to heal but at the same time you don’t want to risk him having a low immune system if he were to contract the Coronavirus. We just have to trust that the Lord will keep him safe and that the drs will make the best decision for George. He has had a low grade fever over the past week and still has his cough. There is something going on with his leg too. He is walking funny and says it hurts. We will get some xrays next week if this continues. His neutrophils were low today so he received a Neupegen shot this afternoon and will get three more before next weeks appointment to try and boost his levels. His face is healing up nicely from his fall off the bed and he seems to be loving life with his best buddies home all day. We just will pray pray and pray some more for Gods ultimate protection from this virus and all other health related problems that are going on inside of his little body. Pray for peace at home throughout this forced but appreciated family bonding quarantine. Pray for everyone who is being effected by this tough time. Health wise, financially and or stress wise. I try never to think about anything bad ever happening but I know it must manifest inside somehow. I know God will once again get all of us through this. I know that so much good will come out of this time of uncertainty. Lots of prayers are needed and we certainly have a lot of down time to commit to that. God is good, always in all ways.

Isaiah 41:10

"Don't be afraid, for I am with you. Don't be discouraged, for I am your God. I will strengthen you and help you. I will hold you up with my victorious right hand."